A little over two years ago, I started taking photographs.
I started taking photographs of the gowns I wore – the pills I took.
I started taking photographs of pain.
At first, I thought it was a weird, pop culture, selfie compulsion… but I wasn’t sharing these photos. They never touched a twitter or a tumblr. They never left my phone.
For months this went on; needle after needle, table after table, crumpled white medical paper and a camera phone.
When my boyfriend left, I cried and told my mother I finally figured out why I was taking these pictures. I don’t look sick. I look like a normal girl. And in trying to be happy, in trying desperately to be normal, I look from the outside like nothing is wrong. Or, if something is wrong, it can’t possibly be too bad.
Somewhere deep inside, afraid that no one believes me, I have been documenting my descent. Can anybody hear me?
Last week a friend told me he had been suffering from a disease for over a year. It took them that long to diagnose him, and silently, secretly, he suffered. I wanted to tell him that I understood, that I truly understood, but how can you? And then I realized that in the midst of my completely inward terror, I had somehow created a tiny bit of good to give.
Better than a billion of my stupid, useless words. Portraits.
This is a beautiful post. I get it…
LikeLiked by 1 person
Thank you so much. It’s so hard sometimes to convey what’s truly going on, and sometimes I think we want to hide the severity of it because we do not want to be defined by our illnesses, but it takes a toll. I read your blog and saw that you have been battling Lyme disease. You are very brave and have been through so much. I wish all the best for you. ❤
LikeLiked by 1 person
Thank you. You, too!
LikeLike
It pains me to see your pain, but in that there is truth. I imagine that one major burden is the sense of isolation that one must feel when illness and suffering create a barrier between you and those that you know and love.
I think it is beautiful that you so boldly display your pain to the benefit of others in isolation.
LikeLike
It’s really sad, but it’s a lesson too.
LikeLike
I’m moved. Thanks for sharing your confidences. Best wishes, luck and courage! ❤
LikeLiked by 1 person
Thank you so much ❤
LikeLike
You’re welcome. Best wishes and see you soon. ❤
LikeLike